My son was diagnosed with Alport syndrome in the fall of 1999. This is a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. People with Alport syndrome experience progressive loss of kidney function. He asked if I would be willing to get tested (it was much less rigorous back then!) and we … Continue reading Meet Kidney Donor Athlete, John!
It’s taken the drive home today and a little perspective to put into words what went down this past weekend in Golden, British Columbia. I was committed to taking on a challenge in my 40th year and the Golden Ultra “Half Pint” turned out to be the perfect one. I initially thought I’d do a … Continue reading Race Report From Kidney Donor Athlete, Shawna!
I was born and raised in New York City and my passions have always been learning and sports, so it was probably inevitable that I became a researcher-professor and have been a life-long runner. My chosen discipline is genomics, basically looking at all one’s genes and how they interact with one’s environment to make us … Continue reading Meet Kidney Donor Athlete, Corey!
I am Leslie Premo and I donated my kidney to my older brother Bill on October 1st, 2014 at Boston Medical Center. I grew up in Vermont in a very active and athletic family and community. Participating in or watching sports and keeping a healthy lifestyle was always a priority. Thankfully, exercise and keeping fit … Continue reading Meet Kidney Donor Athlete, Leslie!
About 10 months ago, my daughter announced to our family that her husband Bryan was in the beginning stages of kidney failure and was going to need a kidney transplant. This was not unfamiliar territory for Bryan or his family. His mom, sister and aunt all had someone else’s kidney in their bodies. His mom … Continue reading Meet Kidney Donor Athlete, Michelle!
Can kidney donors safely run ultramarathons? I think we can do pretty much whatever we set our minds to do! Since my donation in December of 2017, I’ve run 12 ultras, which I admit was too much. Shortly after my 1-year anniversary, I was toast. I didn’t have the usual spring in my step and … Continue reading Race Report From Kidney Donor Athlete, Eric. Leadville 100!
On Tuesday 16 July 2019, my kidney twin, Jason and I, with both of our mothers arrived at the hospital, ready to change his life. It was an exciting moment for us. We checked into the transplant ICU in rooms next to each other and the process began. The first interesting thing to happen was … Continue reading Update From Kidney Donor Athlete, Varla!
This may be long but is worth the read. It will take you on the journey of two people who never quit and ends with a life saving surgery that will change both of their lives forever. I’m a veteran of the US Navy and a 10-year Federal Law Enforcement Officer. My journey started for … Continue reading Meet Kidney Donor Athlete, Matt!
Old running joke: How do you know if someone ran a marathon? Don’t worry, they’ll tell you about it. We’ve all heard that one no doubt. But on this site, those stories have cool plot twists! One year ago as I type this, on 7-13-18, I donated my left kidney to a man who … Continue reading Meet Kidney Donor Athlete, Pete!
For much of my life, I would say that I had a pretty casual relationship with exercise – I’d been a high school tennis player, and still occasionally hit the courts, but likely spent more time watching sports than participating…until ten years ago. For my twenty-eighth birthday, I decided to set an ambitious goal, in … Continue reading Meet Kidney Donor Athlete, Stephanie!